A 2019/2020 Summer Studentship research project
This project will further expand the validity and role of the IBDnow tool, with potential for this tool to be used routinely in paediatric IBD clinics.
Student: Emma Rouse
Supervisors: Professor Andrew Day, Angharad Hurley, Post-Doctoral Researcher, Paediatrics UOC
Sponsor: Cure Kids and The Department of Paediatrics, UOC
For children with IBD the development of self-management skills incorporates being able to recognise and report their symptoms to their parents and clinical team. It is well established that parents under-estimate their children in a number of health metrics such as pain, quality of life, and self-management skills. There is, however, little literature available on how well children’s symptom reports relate to those of their parents.
A symptom self-report tool called IBDnow has been developed for children with IBD that enables them to report their symptoms in a way that has high agreement with their paediatric gastroenterologist (Vernon-Roberts A, et al. A Symptom Self-report Tool for Children With Inflammatory Bowel Disease (IBDnow). J Pediatr Gastroenterol Nutr. 2019;69:e7-e12.) IBDnow consists of a small series of picture and text Likert scales and is easily completed by children aged three years and over. It has been shown to have good validity and generalisability.
This study aims to further explore how well children’s reports of their IBD symptoms correlate with those of their parents, and to examine where discrepancies may lie.
Children and their parents attending paediatric IBD clinics will be recruited. Children and parents would complete the IBDnow independently. Basic demographic data will be collected. Symptom reports will subsequently be compared and contrasted.
Student researcher’s component of the study
The student will be involved in recruitment and in overview of the questionnaire completions. They will subsequently be involved in analysis and in preparation of a report arising from this work.
Medical Student. Communication, pre-approval and agreement with Emma Rouse.
How to apply