What is this survey about?
Knowledge empowers people to manage their health. It is important to have valid tools to measure people's knowledge so that we can identify when further information may be helpful or find the best ways of increasing knowledge.
An international group of researchers, clinicians, and people with osteoarthritis from Australia, Canada, New Zealand, and the United Kingdom have developed the OsteoArthritis Knowledge Scale (OAKS) based on knowledge considered important for people with hip or knee osteoarthritis.
We would now like to broadly test the knowledge of people with hip or knee osteoarthritis and explore how well the survey performs.
Who can take part?
The survey is for people who have hip or knee pain that may be caused by osteoarthritis. The initial section of the survey asks questions to check whether your knee or hip pain is likely to be caused by osteoarthritis. If you have more than one painful joint, you will be asked which joint causes you the most trouble.
Completing the survey is your choice. This information is to help you to decide whether to take part. If you decide to take part, you can stop at any point by closing your browser. If you complete the survey but change your mind later, you can ask for your data to be deleted.
What is involved?
If you agree to take part in this research, you will be asked to complete the survey that has four sections:
- Screening questions to make sure this is the right survey for you - this will check that your hip or knee pain is likely to be due to osteoarthritis
- The OsteoArthritis Knowledge Scale (OAKS)
- Questions about how your hip or knee pain affects you
- Questions about you (these are to understand who has completed the survey, it will not be used to identify you)
We estimate that the entire survey will take around 10 minutes to complete.
You will be asked whether you are willing to complete just the OAKS section again (15 questions; 3 to 4 minutes time commitment) in approximately one week's time. This is so that we can tell whether people's responses change over time. You do not have to do this additional survey, but it really helps us and we would appreciate it if you do.
What are the risks and benefits of this study?
There are no known risks to taking part.
By completing this survey you will contribute to the development of a reliable scale to explore people’s knowledge about osteoarthritis. This will help people who have osteoarthritis by helping researchers to develop and test information to improve knowledge about osteoarthritis and by helping clinicians to identify when someone may benefit from more information about osteoarthritis.
How will the information be stored?
The survey is hosted by QualtricsTM. Data entered will be stored on secure QualtricsTM servers but QualtricsTM employees will not able to access these data. The data will be exported from QualtricsTM to an electronic database securely stored on servers at the University of Otago, New Zealand.
All information collected through this study will be securely stored by the University of Otago for a period of at least ten years. You will be asked whether we may contact you about further research in the future - to invite you to take part. The database of contact details from people who have consented to be contacted about future research will be encrypted and stored in a password controlled server at the University of Otago.
Only members of the research team (named below) will be able to access your contact details. You will be able to request that we remove your contact details at any time. There will be no obligation to take part in any future research.
This database will be deleted 15 January 2031.
Who are the researchers?
The research team includes osteoarthritis researchers, health professionals with backgrounds in chiropractic, physiotherapy and psychology, and people who have osteoarthritis from Australia, Canada, New Zealand, and the United Kingdom. Many people who have lived experience of osteoarthritis helped to develop the survey (we are very grateful to these people).
The core research team are:
- Associate Professor Chris Krageloh, Dr Daniel O'Brien (Auckland University of Technology, NZ)
- Professor Andrew Briggs (Curtin University, AUS)
- Professor Sarah Dean (University of Exeter, UK)
- Professor Simon French (Maquarie University, AUS)
- Dr Jackie Whittaker (University of British Columbia, CAN)
- Ben Metcalf, Professor Kim Bennell, Professor Rana Hinman (University of Melbourne, AUS)
- Dr Ben Darlow, Professor Haxby Abbott, Jane Clark, Mely Brown (University of Otago, NZ)
Who will be able to access the information?
All members of the research team will have access to the data you enter. Following completion of research team analyses, study data (except that which enables you to be identified) will be added to a publicly accessible registry (such as Data Dryad). This will enable more knowledge to be created through these data. Data that may enable you to be identified (such as postcode) will be removed or recoded so that you cannot be identified in any way.
How will the results be used?
The results will mainly be used to test and develop the OAKS. In addition, analyses will look at relationships between osteoarthritis knowledge and pain, function, quality of life and characteristics such as location of residence or duration of symptoms.
The study results will be provided to the general public and the general health community through publication in peer-reviewed journals and presentations at conferences.
A summary of the study results will be emailed to you if you agree to this when you complete the survey. Individual participants will not be identified in any publication, presentation, or summary of results.
This study (D20/301) has been approved by the Department of Primary Health Care and General Practice, University of Otago, Wellington. However, if you have any concerns about the ethical conduct of the research you may contact the University of Otago Human Ethics Committee through the Human Ethics Committee Administrator (Tel +64 3 479 8256) or email firstname.lastname@example.org. Any issues you raise will be treated in confidence and investigated and you will be informed of the outcome.
If you have any questions, please contact: