
Contact Details
- Phone
- +64 3 471 6123
- josephine.johnston@otago.ac.nz
University Links
- Position
- Associate Professor and Head of Department
- Department
- Department of Bioethics (Dunedin)
- Qualifications
- BA LLB(hons) MBHL
- Research summary
- Ethical, legal, and policy issues in medicine and science, particularly reproduction and genetics
- Teaching
- Josephine teaches medical law and ethics to medical, dental, and pharmacy students
- Memberships
- Co-chair, Health Research Council of New Zealand Ethics Committee
- Member, Health Research Council of New Zealand, Gene Technology Advisory Committee
- Member, Editorial Board, Journal of Bioethical Inquiry
Research
Josephine Johnston works on a variety of ethical, legal, and policy issues in medicine and science, with a particular focus on the implications of emerging technologies in human reproduction, psychiatry, genetics, and neuroscience.
A New Zealand-trained lawyer with a master’s degree in bioethics and health law from the University of Otago, Josephine worked as a grant-funded bioethics researcher in North America for twenty years. She held research positions at The Hastings Center, Dalhousie University in Canada, and the University of Minnesota, USA, and taught bioethics and health law at Columbia University in New York. She has also worked as a lawyer in both New Zealand and Germany. From 2012-2022, Josephine was Director of Research at The Hastings Center, an independent bioethics research institute in Garrison, New York. Josephine was elected as a Hastings Center Fellow in 2023.
Josephine’s scholarly work has appeared in medical, scientific, policy, law, and bioethics journals, including New England Journal of Medicine, Science, Nature, Hastings Center Report, and Journal of Law, Medicine and Ethics. She is co-editor of Human Flourishing in an Age of Gene Editing (Oxford University Press, 2019) and Trust and Integrity in Biomedical Research: The Case of Financial Conflicts of Interest (Johns Hopkins University Press, 2010). Her public-facing commentaries have appeared in Stat News, The New Republic, Time, Washington Post, and The Scientist.
Publications
Martinez Arias, A. a., Rivron, N., Tajbakhsh, S., Johnston, J., Alev, C., Bally-Cuif, L., … Yu, L. (2026). Human stem cell-based embryo models: Innovation, ethics, and policy. Human Reproduction, 41(6), 830-846. doi: 10.1093/humrep/deag035 Journal - Research Article
Curran Wills, B., Matthews, M. M., Johnston, J., Bolo, I., Ottman, R., & Appelbaum, P. S. (2026). Systematic review: The psychosocial impacts of autism-related genetic testing. Journal of the American Academy of Child & Adolescent Psychiatry, (65), 4, 505-526. doi: 10.1016/j.jaac.2025.06.024 Journal - Research Article
Johnston, J., MacDonald, L., Neale, H., & Jonas, M. (2025). Is Aotearoa's research ethics system fit for purpose? [Panel session]. Proceedings of the Australasian Association of Bioethics and Health Law (AABHL) Conference. Retrieved from https://aabhl2025.w.events4you.currinda.com Conference Contribution - Published proceedings: Abstract
Johnston, J. (2025). What is good parenting in an age of genomics? Proceedings of the Australasian Association of Bioethics and Health Law (AABHL) Conference. Retrieved from https://aabhl2025.w.events4you.currinda.com Conference Contribution - Published proceedings: Abstract
Mackle, J., Robertson, S. P., & Johnston, J. (2025). Structural features of genetic risk and the need for a relational approach to disclosure. American Journal of Bioethics, 25(10), 37-40. doi: 10.1080/15265161.2025.2543741 Journal - Research Article
2026
Journal - Research Article
Martinez Arias, A. a., Rivron, N., Tajbakhsh, S., Johnston, J., Alev, C., Bally-Cuif, L., … Yu, L. (2026). Human stem cell-based embryo models: Innovation, ethics, and policy. Human Reproduction, 41(6), 830-846. doi: 10.1093/humrep/deag035
Curran Wills, B., Matthews, M. M., Johnston, J., Bolo, I., Ottman, R., & Appelbaum, P. S. (2026). Systematic review: The psychosocial impacts of autism-related genetic testing. Journal of the American Academy of Child & Adolescent Psychiatry, (65), 4, 505-526. doi: 10.1016/j.jaac.2025.06.024
2025
Journal - Research Article
Mackle, J., Robertson, S. P., & Johnston, J. (2025). Structural features of genetic risk and the need for a relational approach to disclosure. American Journal of Bioethics, 25(10), 37-40. doi: 10.1080/15265161.2025.2543741
Johnston, J. (2025). Reframing low birth rates as an existential opportunity. Journal of Ethics & Emerging Technologies, 35(2). doi: 10.55613/jeet.v35i2.167
Conference Contribution - Published proceedings: Abstract
Johnston, J., MacDonald, L., Neale, H., & Jonas, M. (2025). Is Aotearoa's research ethics system fit for purpose? [Panel session]. Proceedings of the Australasian Association of Bioethics and Health Law (AABHL) Conference. Retrieved from https://aabhl2025.w.events4you.currinda.com
Johnston, J. (2025). What is good parenting in an age of genomics? Proceedings of the Australasian Association of Bioethics and Health Law (AABHL) Conference. Retrieved from https://aabhl2025.w.events4you.currinda.com
2024
Journal - Research Article
Johnston, J., Tabb, K., Pacia, D., Lee, S. S.-J., Chung, W. K., & Appelbaum, P. S. (2024). Understanding individualised genetic interventions as research-treatment hybrids. Journal of Medical Ethics. doi: 10.1136/jme-2023-109729
Journal - Research Other
Johnston, J. (2024). Sorry, clone [An invited response to A Healing at the Triple B Trophy Lodge]. Issues in Science & Technology, (Future Tense Fiction). Retrieved from https://issues.org/futuretensefiction/
Dolan, D. D., Pacia, D. M., Johnston, J., Lee, S. S.-J., & Cho, M. K. (2024). Expanding the agenda for a more just genomics [Introduction]. Hastings Center Report, 54(Suppl. 2), S2-S13. doi: 10.1002/hast.4924
Conference Contribution - Published proceedings: Abstract
Mackle, J., & Johnston, J. (2024). Testing children for adult-onset conditions: A New Zealand case study. Proceedings of the Australasian Association of Bioethics and Health Law (AABHL) Conference. Retrieved from https://aabhlconference.com
Jonas, M., Devaraj, D., Taylor, M., & Johnston, J. (2024). National data sets, research ethics, and the risk of group harms. Proceedings of the Australasian Association of Bioethics and Health Law (AABHL) Conference. Retrieved from https://aabhlconference.com
Johnston, J., & Mackle, J. (2024). Rethinking the rule against testing children for adult-onset conditions: A New Zealand case study. Proceedings of the 6th Ethical, Legal and Social Implications (ELSI) Congress: Reimagining the Benefits of Genomic Sciences. Retrieved from https://elsicon2024.eventscribe.net
Conference Contribution - Verbal presentation and other Conference outputs
Johnston, J. (2024, May). Reframing low birthrates as an existential opportunity. Keynote presentation at the International Conference on Existential Threats and Other Disasters: How should we address them, Budva, Montenegro.
Other Research Output
Johnston, J. (2024, March ). Medical assisted dying in New Zealand. Chinese University of Hong Kong (CUHK) Centre for Bioethics End-of-Life Seminar Series, Hong Kong, China. Retrieved from https://www.youtube.com/watch?v=2c63utGMVPE
Johnston, J. (2024, March). Challenges to the rule against testing children. Chinese University of Hong Kong (CUHK) Centre for Bioethics and Hong Kong Children's Hospital (HKCH) Clinical Genetic Service Unit Joint Seminar, Hong Kong, China. [Research Presentation].
Other - Edited Journal
Johnston, J., Dolan, D. D., Pacia, D. M., Lee, S. S.-J., & Cho, M. K. (Eds.). (2024). Hastings Center Report, 54(Suppl. 2), [Special report: Envisioning a more just genomics]. Retrieved from https://doi.org/10.1002/hast.4923
2023
Journal - Research Article
Lee, S. S.-J., Caruncho, M., Chung, W. K., Johnston, J., Tabb, K., & Appelbaum, P. S. (2023). Individualized interventions for rare genetic conditions and the research-treatment spectrum: Stakeholder perspectives. Genetics in Medicine, 25(6), 100832. doi: 10.1016/j.gim.2023.100832
Journal - Research Other
Johnston, J. (2023). When less is more: Lessons for expanded carrier screening from newborn sequencing research. American Journal of Bioethics, 23(7), 118-120. doi: 10.1080/15265161.2023.2210037
Conference Contribution - Published proceedings: Abstract
Dive, L., Johnston, J., Dawson, A., Holmes, I., & Newson, A. (2023). The ethics of sequencing every baby at birth. Proceedings of the Australasian Association of Bioethics and Health Law (AABHL) Conference. Retrieved from https://aabhlconference.com/2023
Walker, S., Anderson, L., & Johnston, J. (2023). Consent for student involvement in patient care: Developments and tensions in New Zealand law and medical education. Proceedings of the Australasian Association of Bioethics and Health Law (AABHL) Conference. Retrieved from https://aabhlconference.com/2023
Other Research Output
Hyun, I. & Johnston, J. (2023, February). Should we change "Chimeric" human-animal research? The Hastings Center webinar. Retrieved from https://www.thehastingscenter.org/should-we-change-chimeric-human-animal-research/
2022
Journal - Research Article
Johnston, J., Hyun, I., Neuhaus, C. P., Maschke, K. J., Marshall, P., Craig, K. P., … Wilkerson, A. (2022). Clarifying the ethics and oversight of chimeric research. Hastings Center Report, 52(6, Suppl. 2), S2-S23. doi: 10.1002/hast.1427
Journal - Research Other
Johnston, J., & Matthews, L. J. (2022). Polygenic embryo testing: Understated ethics, unclear utility. Nature Medicine, 28, 446-448. doi: 10.1038/s41591-022-01743-0
Conference Contribution - Verbal presentation and other Conference outputs
Hyun, I., & Johnston, J. M. (2022, December). Clarifying the ethics and oversight of chimeric research. Workshop presentation at the Public Responsibility in Medicine and Research (PRIM&R) Annual Conference, [Online].
Johnston, J. (2022, July). The impact of social norms on individual reproductive choices to have reproductive carrier screening. Verbal presentation at the 16th World Congress of Bioethics (WCB), Basel, Switzerland.
Other Research Output
Johnston, J. M. & Hyun, I. (2022, September). Chimeras (but don't call them chimeras): An introduction to the ethics and policy debate. Public Responsibility in Medicine and Research (PRIM&R) webinar. [Research Presentation].
Other - Edited Journal
Maschke, K. J., Matthews, M. M., Craig, K. P., Neuhaus, C. P., Hyun, I., & Johnston, J. (Eds.). (2022). Hastings Center Report, 52(6, Suppl. 2) [Special report: Creating chimeric animals: Seeking clarity on ethics and oversight]. doi: 10.1002/hast.1426. [Guest Editors].
2021
Journal - Research Other
Johnston, J., Baylis, F., & Greely, H. T. (2021). ISSCR: Grave omission of age limit for embryo research. Nature, 594, 495. doi: 10.1038/d41586-021-01697-2
Conference Contribution - Published proceedings: Abstract
Johnston, J. (2021). Towards clarity about the ethics of human-animal chimera research. Proceedings of the Australasian Association of Bioethics and Health Law (AABHL) Conference. Retrieved from https://aabhl.org/conferences/
Johnston, J. (2021). What's at stake in efforts to drop the 14 day rule for human embryo research? Proceedings of the Australasian Association of Bioethics and Health Law (AABHL) Conference. Retrieved from https://aabhl.org/conferences/
Other Research Output
Johnston, J. (2021, May). Towards clarity about the ethics of human-animal chimera research. Bioethics seminar, Bioethics Centre, Division of Health Sciences, University of Otago, Dunedin, New Zealand. [Department Seminar].
2020
Journal - Research Article
Johnston, J. (2020). Shaping the CRISPR gene-editing debate: Questions about enhancement and germline modification. Perspectives in Biology & Medicine, 63(1), 141-154. doi: 10.1353/pbm.2020.0011
Journal - Research Other
Johnston, J. (2020). Budgets versus bans: How U.S. law restricts germline gene editing [At law]. Hastings Center Report, 50(2), 4-5. doi: 10.1002/hast.1094
2019
Edited Book - Research
Parens, E., & Johnston, J. (Eds.). (2019). Human flourishing in an age of gene editing. New York, NY: Oxford University Press, 240p. doi: 10.1093/oso/9780190940362.001.0001
Chapter in Book - Research
Johnston, J., & Zacharias, R. L. (2019). US stem cell research policy. In A. Atala, R. Lanza, A. G. Mikos & R. Nerem (Eds.), Principles of regenerative medicine. (Third ed.) (pp. 1309-1329). London, UK: Academic Press. doi: 10.1016/B978-0-12-809880-6.00075-8
Johnston, J. (2019). "Good parents" can promote their own and their children's flourishing. In E. Parens & J. Johnston (Eds.), Human flourishing in an age of gene editing. (pp. 112-125). New York, NY: Oxford University Press. doi: 10.1093/oso/9780190940362.003.0009
Journal - Research Article
de Graeff, N., Jongsma, K. R., Johnston, J., Hartley, S., & Bredenoord, A. L. (2019). The ethics of genome editing in non-human animals: A systematic review of reasons reported in the academic literature. Philosophical Transactions of the Royal Society B, 374, 20180106. doi: 10.1098/rstb.2018.0106
Journal - Research Other
Takahashi, S., Johnston, J., & Patrizio, P. (2019). Lessons from the premature adoption of preimplantation embryo testing. Genetics in Medicine, 21(5), 1038-1040. doi: 10.1038/s41436-018-0314-z
Adashi, E. Y., Caplan, A. L., Capron, A., Chapman, A. R., Cho, M., Clayton, E. W., … Johnston, J., … Walters, L. (2019). In support of mitochondrial replacement therapy. Nature Medicine, 25, 870-871. doi: 10.1038/s41591-019-0477-4
2018
Journal - Research Article
Johnston, J., Lantos, J. D., Goldenberg, A., Chen, F., Parens, E., Koenig, B. A., members of the NSIGHT Ethics and Policy Advisory Board. (2018). Sequencing newborns: A call for nuanced use of genomic technologies. Hastings Center Report, 48(Suppl. 2). doi: 10.1002/hast.874
Journal - Research Other
Johnston, J., & Juengst, E. (2018). Are parents really obligated to learn as much as possible about their children's genomes? Hastings Center Report, 48(Suppl. 2), S14-S15. doi: 10.1002/hast.877
Conference Contribution - Verbal presentation and other Conference outputs
Gould, F., Johnston, J., Sanjana, N., & Sternberg, S. (2018, May). Rewriting life: The promise and peril of editing your DNA. Panel discussion at the World Science Festival, New York, USA.
Other Research Output
Johnston, J., Hynes, R., and Kraschel, K. (2018, March). Ethical implications of human gene editing and CRISPR technology. Program for Biomedical Ethics lecture, Yale School of Medicine, New Haven, USA. [Public Seminar].
2017
Chapter in Book - Research
Johnston, J. (2017). Traumatic responsibility: Victor Frankenstein as creator and casualty. In D. H. Guston, E. Finn & J. S. Robert (Eds.), Mary Shelley's Frankenstein: Annotated for scientists, engineers, and creators of all kinds. (pp. 201-208). Cambridge, USA: MIT Press. doi: 10.7551/mitpress/9780262533287.003.0006
Journal - Research Article
Johnston, J., & Zacharias, R. L. (2017). The future of reproductive autonomy. Hastings Center Report, 47(Suppl. 3), S6-S11. doi: 10.1002/hast.789
Journal - Research Other
King, L. P., Zacharias, R. L., & Johnston, J. (2017). Autonomy in tension: Reproduction, technology, and justice [Introduction]. Hastings Center Report, 47(Suppl. 3), S2-S5. doi: 10.1002/hast.788
Johnston, J., Farrell, R. M., & Parens, E. (2017). Supporting women's autonomy in prenatal testing. New England Journal of Medicine, 377(6), 505-507. doi: 10.1056/NEJMp1703425
Conference Contribution - Verbal presentation and other Conference outputs
Church, G., Johnston, J., & Marchant, G. E. (2017, February). The ethics of gene editing: Should concerns beyond safety matter in science policy. Panel discussion at the American Association for the Advancement of Science (AAAS) Annual Meeting: Serving Society Through Science Policy, Boston, USA.
Johnston, J. (2017, February). Beyond safety and efficacy in gene editing: Understanding the range of ethical issues. Verbal presentation at the American Association for the Advancement of Science (AAAS) Annual Meeting: Serving Society Through Science Policy, Boston, USA.
Johnston, J. (2017, April). The future of reproductive autonomy. Verbal presentation at the Harvard Medical School Annual Bioethics Conference, Boston, USA.
Adashi, E., Burke, T. B., & Johnston, J. (2017, April). Gene editing: Parenting in the genomic age. Panel discussion at the Association of Health Care Journalists Conference, Orlando, USA.
Johnston, J., & Wu, C.-T. (2017, April). Gene editing: A primer for journalists. Panel discussion at the Association of Health Care Journalists Conference, Orlando, USA.
Achenbach, J., Chen, X., Green, R., & Johnston, J. (2017, October). Human gene editing: Is there a parental obligation to create "better" babies. Verbal presentation at the World Conference of Science Journalists (WCSJ), San Francisco, USA.
Other Research Output
Westphal, L., Johnston, J., and Rienhart (2017, July). Childrearing ability and fertility services: Ethical policy considerations. Ethics webinar, American Society for Reproductive Medicine (ASRM). [Webinar].
Dincer, Z., Johnston, J., Klitzman, R., and Roxland, B. E. (2017, May). The bioethics of stem cell research and therapy. Panel discussion, American Museum of Natural History, New York City, USA. [Public Discussion].
Johnston, J. (2017, September). Beyond safety: Ethical issues in gene editing. Staff seminar, Faculty of Law, University of Otago, Dunedin, New Zealand. [Department Seminar].
Johnston, J. (2017, September). Beyond safety: Ethical issues in gene editing. Bioethics seminar, Bioethics Centre, University of Otago, Dunedin, New Zealand. [Department Seminar].
Dallaire, G. and Johnston, J. (2017, January). 'Fixing' the human genome: Promises and pitfalls: What can we do, what should we do?. Café Scientifique panel discussion, presented by NTE Impact Ethics, Dalhousie University, Halifax, Canada. [Public Discussion].
Johnston, J. (2017, April). Sequencing the stork: Genomics and the "good parent". Biomedical Ethics Unit seminar, McGill University, Montreal, Canada. [Research Presentation].
Johnston, J., Byrom, A., Hackwell, K., and Hania, J. (2017, September). Editing them out: The end for pests?. Editing our genes: Promises and pitfalls, Royal Society of New Zealand Prestigious speakers series, Wellington, New Zealand. [Public Seminar].
Johnston, J. (2017, September). When 'can do' crosses 'should do': What to do about human gene editing?. Editing our genes: Promises and pitfalls, Royal Society of New Zealand Prestigious speakers series, Wellington, New Zealand. [Public Seminar].
Johnston, J., Everett-Hincks, J., Prime, K., and Rolleston, W. (2017, September). More for all: Nature by design. Editing our genes: Promises and pitfalls, Royal Society of New Zealand Prestigious speakers series, Palmerston North, New Zealand. [Public Seminar].
Johnston, J., Birdsall, M., Hudson, M., and Shelling, A. (2017, September). Making babies: You, me and gene editing?. Editing our genes: Promises and pitfalls, Royal Society of New Zealand Prestigious speakers series, Auckland, New Zealand. [Public Seminar].
Johnston, J., Fineran, P., Gavaghan, C.and Harre Hindmarsh, J. (2017, September). Perfectly healthy: Disease-free by technology?. Editing our genes: Promises and pitfalls, Royal Society of New Zealand Prestigious speakers series, Dunedin, New Zealand. [Public Seminar].
Johnston, J. (2017, January). The nebulous ethics of human germline gene editing. Hastings Bioethics Forum Essay: Children and Families, Gene Editing. Retrieved from https://www.thehastingscenter.org/nebulous-ethics-human-germline-gene-editing
Johnston, J. (2017, January). The nebulous ethics of human germline gene editing. Impact Ethics blog in Assisted Reproduction, Health Research, Law & Policy, Science and Technology. Retrieved from https://impactethics.ca/2017/01/23/the-nebulous-ethics-of-human-germline-gene-editing
Other - Edited Journal
Johnston, J. (Ed.). (2017). Hastings Center Report, 47(Suppl. 3) [Special edition: Just reproduction: Reimagining autonomy in reproductive medicine]. Retrieved from https://www.thehastingscenter.org/publications-resources/special-reports-2/
2016
Chapter in Book - Research
Johnston, J. (2016). If thy leg offend thee, cut it off: Surgery, consent and the criminal law. In M. Henaghan & J. Wall (Eds.), Law, ethics, and medicine: Essays in honour of Peter Skegg. (pp. 147-169). Wellington, New Zealand: Thomson Reuters.
Journal - Research Other
Hyun, I., Wilkerson, A., & Johnston, J. (2016). Embryology policy: Revisit the 14-day rule. Nature, 533, 169-171. doi: 10.1038/533169a
Journal - Professional & Other Non-Research Articles
Johnston, J., & Trump, E. (2016). Uterus transplants are no match for the safety of surrogacy [First opinion]. STATnews, (7 March). Retrieved from https://www.statnews.com/2016/03/07/uterus-transplants-surrogacy
Johnston, J. (2016). Little people, big problems [Field notes]. Hastings Center Report, 46(1). doi: 10.1002/hast.524
Conference Contribution - Verbal presentation and other Conference outputs
Church, G., Dow, L., Johnston, J., Matthews, B., Ostrer, H., & Sauer, N. (2016, June). Splicing and dicing DNA: Genome engineering and the CRISPR revolution. Panel discussion at the World Science Festival, New York, USA.
Johnston, J. (2016, April). Responsible motherhood Inc.: How genetic testing companies are shaping what it means to be a good parent. Verbal presentation at the Alden March Bioethics Institute Reproductive Ethics Conference, Albany, USA.
Other Research Output
Johnston, J. (2016, September). Human gene editing: What are the moral and ethical considerations. Program for Biomedical Ethics lecture, Yale School of Medicine, New Haven, USA. [Public Seminar].
Johnston, J. (2016, October). Human genetic engineering: What can we do? What should we do?. The Hastings Center, New York, USA. [Public Seminar].
2015
Chapter in Book - Research
Johnston, J., & Parens, E. (2015). Neuroethical issues in the diagnosis and treatment of children with mood and behavioral distrubances. In J. Clausen & N. Levy (Eds.), Handbook of neuroethics. (pp. 1673-1688). Dordrecht, The Netherlands: Springer. doi: 10.1007/978-94-007-4707-4_147
Johnston, J., & Scheinerman, N. (2015). Protecting research, preserving trust: The importance of managing industry relationships in psychiatric research. In J. Z. Sadler, W. van Staden & K. W. M. Fulford (Eds.), Oxford handbook of psychiatric ethics (Vol. 1). (pp. 1026-1042). Oxford, UK: Oxford University Press. doi: 10.1093/oxfordhb/9780198732372.013.12
Journal - Research Article
Johnston, J., Banerjee, M. P., & Geller, G. (2015). Trustworthy research institutions: The challenging case of studying the genetics of intelligence. Hastings Center Report, 45(Suppl. 1), S59-S65. doi: 10.1002/hast.501
Journal - Research Other
Johnston, J., Gusmano, M. K., & Patrizio, P. (2015). In search of real autonomy for fertility patients. Health Economics, Policy & Law, 10(3), 243-250. doi: 10.1017/S1744133114000164
Johnston, J., Gusmano, M. K., & Patrizio, P. (2015). Reducing rate of fertility multiples requires policy changes. JAMA Pediatrics, 169(3), 287. doi: 10.1001/jamapediatrics.2014.3219
Journal - Professional & Other Non-Research Articles
Johnston, J. (2015). Embrace uncertainty [Experts debate: Are we playing with fire when we edit human genes?]. STATnews, (17 November). Retrieved from https://www.statnews.com/2015/11/17/gene-editing-embryo-crispr
Johnston, J. (2015). Is there room for not knowing "everything"? [Field notes]. Hastings Center Report, 45(1). doi: 10.1002/hast.404
2014
Journal - Research Article
Wasserman, D., & Johnston, J. (2014). Seeing responsibility: Can neuroimaging teach us anything about moral and legal responsibility. Hastings Center Report, 44(S2), S37-S49. doi: 10.1002/hast.297
Journal - Research Other
Johnston, J., Gusmano, M. K., & Patrizio, P. (2014). Preterm births, multiples, and fertility treatment: Recommendations for changes to policy and clinical practices. Fertility & Sterility, 102(1), 36-39. doi: 10.1016/j.fertnstert.2014.03.019
Parens, E., & Johnston, J. (2014). Neuroimaging: Beginning to appreciate its complexities. Hastings Center Report, 44(S2), S2-S7. doi: 10.1002/hast.293
Conference Contribution - Verbal presentation and other Conference outputs
Johnston, J. (2014, July). Difficult decisions about the beginning of life: Continuing and emerging challenges in technological societies. Verbal presentation at the Chinese University of Hong Kong (CUHK) Centre for Bioethics first Annual Summer Workshop, Hong Kong, China.
Other Research Output
Johnston, J. (2014, January). Prenatal identification of increased risk for schizophrenia. Braingenethics.com: Commentary. Retrieved from https://braingenethics.cumc.columbia.edu/prenatal-identification-of-increased-risk-for-schizophrenia/
Johnston, J. and Zoll, M. (2014, November). Is freezing your eggs dangerous? A primer. New Republic. Retrieved from https://newrepublic.com/article/120077/dangers-and-realities-egg-freezing
Other - Edited Journal
Johnston, J., & Parens, E. (Eds.). (2014). Hastings Center Report, 44(Suppl. 2) [Special edition: Interpreting neuroimages: An introduction to the technology and its limits]. Retrieved from https://www.thehastingscenter.org/publications-resources/special-reports-2/
2013
Journal - Research Article
Johnston, J., & Gusmano, M. K. (2013). Why we should all pay for fertility treatment: An argument from ethics and policy. Hastings Center Report, 43(2), 18-21. doi: 10.1002/hast.155
Journal - Research Other
Wilkerson, A., Wongsatittham, K., & Johnston, J. (2013). The NIH Stem Cell Registry: An absence of gamete donor consent. Cell Stem Cell, 12, 147-148. doi: 10.1016/j.stem.2013.01.002
Johnston, J. (2013). The ghost of the schizophrenogenic mother. AMA Journal of Ethics, 15(9), 801-805. doi: 10.1001/virtualmentor.2013.15.9.oped1-1309
Other Research Output
Johnston, J. (2013, December). The FDA and 23andMe: Overreaching and overreacting?. Braingenethics.com: Commentary. Retrieved from https://braingenethics.cumc.columbia.edu/the-fda-and-23andme-overreaching-and-overreacting
2012
Journal - Research Article
Johnston, J. (2012). Normalizing atypical genitalia: How a heated debate went astray. Hastings Center Report, 42(6), 32-44. doi: 10.1002/hast.82
Journal - Professional & Other Non-Research Articles
Johnston, J. (2012). It's not about the money [Field notes]. Hastings Center Report, 35(2). doi: 10.1353/hcr.2005.0023
Johnston, J. (2012). Talking points [Field notes]. Hastings Center Report, 38(3). doi: 10.1353/hcr.0.0000
Other Research Output
Johnston, J. (2012, January). Pitch perfect: Academic detailing has the potential to significantly improve clinical practice. The Scientist: A thought experiment. Retrieved from https://www.the-scientist.com/thought-experiment/pitch-perfect-41548
2011
Chapter in Book - Research
Johnston, J. (2011). US stem cell research policy. In A. Atala, R. Lanza, J. A. Thomson & R. Nerem (Eds.), Principles of regenerative medicine. (2nd ed.) (pp. 1131-1143). London, UK: Academic Press. doi: 10.1016/B978-012369410-2.50082-6
Journal - Research Article
Parens, E., & Johnston, J. (2011). Troubled children: Diagnosing, treating, and attending to context. Hastings Center Report, 41(Suppl. 2), S4-S31.
Other Research Output
Johnston, J. and Parens, E. (2011, March). What state budget cuts mean for the most troubled children: Children's psychiatric treatment: Pay now or pay more later. Psychology Today blog: Medicine, mind and morals. Retrieved from https://www.psychologytoday.com/nz/blog/medicine-mind-and-morals/201103/what-state-budget-cuts-mean-the-most-troubled-children
Parens, E., and Johnston, J. (2011, June). As tests to predict Alzheimer's emerge, so may debates over the right to die. TIME.com blog: Death & Dying. Retrieved from https://healthland.time.com/2011/06/08/as-tests-better-predict-alzheimers-patients-may-contemplate-their-right-to-die/
Other - Edited Journal
Parens, E., & Johnston, J. (Eds.). (2011). Hastings Center Report, 41(Suppl. 2) [Special edition: Troubled children: Diagnosing, treating, and attending to context]. Retrieved from https://www.thehastingscenter.org/publications-resources/special-reports-2/
2010
Edited Book - Research
Murray, T. H., & Johnston, J. (Eds.). (2010). Trust and integrity in biomedical research: The case of financial conflicts of interest. Baltimore, MD: John Hopkins University Press, 267p.
Chapter in Book - Research
Johnston, J. (2010). Financial conflicts of interest in biomedical research. In T. H. Murray & J. Johnston (Eds.), Trust and integrity in biomedical research: The case of financial conflicts of interest. (pp. 3-32). Baltimore, MD: John Hopkins University Press.
Journal - Research Other
Johnston, J. (2010). Unify guidelines for reviewing embryonic stem-cell research. Nature, 466, 179. doi: 10.1038/466179a
Johnston, J. (2010). America's stem cell mess [Thought experiment]. Scientist, 24(10), 33-34. [Commentary].
Parens, E., Johnston, J., & Carlson, G. A. (2010). Pediatric mental health care dysfunction disorder? New England Journal of Medicine, 362(20), 1853-1855. doi: 10.1056/NEJMp1003175
Parens, E., & Johnston, J. (2010). Controversies concerning the diagnosis and treatment of bipolar disorder in children. Child & Adolescent Psychiatry & Mental Health, 4, 9. doi: 10.1186/1753-2000-4-9
Other Research Output
Johnston, J. (2010, October). America's stem cell mess. The Scientist. Retrieved from https://www.the-scientist.com/uncategorized/americas-stem-cell-mess-43039
Johnston, J. (2010, December). Why I mostly love ASB Bank's IVF ad: Revealing the difficulty of paying for fertility treatments. Psychology Today blog: Medicine, mind and morals. Retrieved from https://www.psychologytoday.com/nz/blog/medicine-mind-and-morals/201012/why-i-mostly-love-asb-bank-s-ivf-ad
2009
Chapter in Book - Research
Miller, P. B., & Johnston, J. (2009). Consent and private liability in clinical research. In O. Corrigan, J. McMillan, K. Liddell, M. Richards & C. Weijer (Eds.), The limits of consent: A socio-ethical approach to human subject research in medicine. (pp. 39-56). Oxford University Press. doi: 10.1093/acprof:oso/9780199231461.003.0003
Davis, M., & Johnston, J. (2009). Conflict of interest in four professions: A comparative analysis. In B. Lo & M. J. Field (Eds.), Conflict of interest in medical research, education, and practice. (pp. 302-357). Washington, D.C.: National Academies Press.
Chapter in Book - Other
Elliott, C., & Johnston, J. (2009). Bioethics: Practice. In Encyclopedia of life sciences (eLS). John Wiley & Sons. doi: 10.1002/9780470015902.a0005892.pub2
Journal - Research Other
Johnston, J. (2009). Judging octomom. Hastings Center Report, 39(3), 23-25. doi: 10.1353/hcr.0.0133
Parens, E., & Johnston, J. (2009). Facts, values, and Attention-Deficit Hyperactivity Disorder (ADHD): An update on the controversies. Child & Adolescent Psychiatry & Mental Health, 3, 1. doi: 10.1186/1753-2000-3-1
Commissioned Report for External Body
Parens, E., Johnston, J., & Moses, J. (Eds.). (2009). Ethical issues in synthetic biology: An overview of the debates [Synbio 3]. Commissioned by the Foresight and Governance Project, Woodrow Wilson International Center for Scholars. Washington, D.C.: Woodrow Wilson International Centre for Scholars, 32p. Retrieved from https://www.wilsoncenter.org/publication/ethical-issues-synthetic-biology
Other Research Output
Johnston, J. (2009, October). Government limits and price control in The Trouble with Twins. The Opinion Pages: A New York Times Blog. Retrieved from https://roomfordebate.blogs.nytimes.com/2009/10/11/the-trouble-with-twin-births/#josephine
2008
Chapter in Book - Research
Parens, E., & Johnston, J. (2008). Mental health in children and adolescents. In M. Crowley (Ed.), From birth to death and bench to clinic: The Hastings Center bioethics briefing book for journalists, policymakers, and campaigns. (pp. 101-106). Garrison, NY: Hastings Center. Retrieved from https://www.thehastingscenter.org/briefingbook
Johnston, J. (2008). Intellectual property and biomedicine. In M. Crowley (Ed.), From birth to death and bench to clinic: The Hastings Center bioethics briefing book for journalists, policymakers, and campaigns. (pp. 93-96). Garrison, NY: Hastings Center. Retrieved from https://www.thehastingscenter.org/briefingbook
Johnston, J. (2008). Conflict of interest in biomedical research. In M. Crowley (Ed.), From birth to death and bench to clinic: The Hastings Center bioethics briefing book for journalists, policymakers, and campaigns. (pp. 31-34). Garrison, NY: Hastings Center. Retrieved from https://www.thehastingscenter.org/briefingbook
Johnston, J. (2008). US stem cell research policy. In A. Atala, R. Lanza, J. A. Thomson & R. M. Nerem (Eds.), Principles of regenerative medicine. (pp. 1354-1365). London, UK: Academic Press. doi: 10.1016/B978-012369410-2.50082-6
Journal - Research Other
Parens, E., & Johnston, J. (2008). Understanding the agreements and controversies surrounding childhood psychopharmacology. Focus: The Journal of Lifelong Learning in Psychiatry, 6(3), 322, 330. doi: 10.1176/foc.6.3.foc322
Parens, E., & Johnston, J. (2008). Understanding the agreements and controversies surrounding childhood psychopharmacology. Child & Adolescent Psychiatry & Mental Health, 2, 5. doi: 10.1186/1753-2000-2-5
Johnston, J. (2008). The ethics of outsourcing surrogate motherhood to India. Medscape Journal of Medicine, 10(3), 52. [Commentary].
Parens, E., Johnston, J., & Moses, J. (2008). Do we need "synthetic bioethics"? Science, 321(5895), 1449. doi: 10.1126/science.1163821
2007
Journal - Research Article
Johnston, J. (2007). Tied up in nots over genetic parentage. Hastings Center Report, 37(4), 28-31. doi: 10.1353/hcr.2007.0055
Johnston, J. (2007). Health related academic technology transfer: Rethinking patenting and licensing practices. International Journal of Biotechnology, 9(2), 156-171. doi: 10.1504/IJBT.2007.013049
Johnston, J., & Wasunna, A. A. (2007). Patents, biomedical research, and treatments: Examining concerns, canvassing solutions. Hastings Center Report, 37(Suppl. 1), S2-S35.
Parens, E., & Johnston, J. (2007). Does it make sense to speak of neuroethics? EMBO Reports, 8(Suppl. 1), S61-S64. doi: 10.1038/sj.embor.7400992
Journal - Research Other
Johnston, J., & Wasunna, A. A. (2007). Introduction [Special issue: Biomedicine, patents, and access]. International Journal of Biotechnology, 9(2), 101-104. [Editorial].
Other - Edited Journal
Johnston, J., & Wasunna, A. A. (Eds.). (2007). International Journal of Biotechnology, 9(2) [Special edition: Biomedicine, patents, and access]. [Guest Editors].
2006
Chapter in Book - Research
Elliott, C., & Johnston, J. (2006). Bioethics: Practice. In Encyclopedia of life sciences (eLS). John Wiley & Sons. doi: 10.1002/9780470015902.a0005892
Journal - Research Article
Johnston, J. (2006). Is research in Canada limited to "surplus" embryos? Health Law Review, 14(3), 3-13.
Johnston, J. (2006). Paying egg donors: Exploring the arguments. Hastings Center Report, 36(1), 28-31. doi: 10.1353/hcr.2006.0010
Journal - Research Other
Johnston, J. (2006). [Review of the book Bioethics and the new embryology]. Quarterly Review of Biology, 81(2), 160-161. doi: 10.1086/506036
Reid, L., Johnston, J., & Baylis, F. (2006). From the special issue editors [Special issue: Ethics and stem cell research: Shifting the discourse]. Journal of Bioethical Inquiry, 3(1-2), 11-13. doi: 10.1007/s11673-006-9008-3
Other Research Output
Parens, E. and Johnston, J. (2006, September). Against hyphenated ethics. Bioethics Forum: Diverse Commentary on Issues in Bioethics, Hastings Centre Report. Retrieved from www.bioethicsforum.org/genethics-neuroethics-nanoethics.asp
Other - Edited Journal
Reid, L., Johnston, J., & Baylis, F. (Eds.). (2006). Journal of Bioethical Inquiry, 3(1-2) [Special issue: Ethics and stem cell research: Shifting the discourse]. [Guest Editors].
2005
Journal - Research Article
Johnston, J. (2005). Stem cell protocols: The NAS guidelines are a useful start. Hastings Center Report, 35(6), 16-17. doi: 10.1353/hcr.2005.0109
Journal - Research Other
Johnston, J. (2005). [Review of the book The second tree]. Quarterly Review of Biology, 80(2), 230-231. doi: 10.1086/433068
Johnston, J. (2005). [Review of the book Stem cell research]. Amyloid, 12(4), 263. doi: 10.1080/13506120500352560
2004
Journal - Research Other
Johnston, J. (2004). When money talks and science listens [Review of the books The truth about the drug companies and Science in the private interest]. Hastings Center Report, 34(5), 44-45. doi: 10.2307/3527592
Johnston, J. (2004). Gene therapy: Two steps forward, one step back [Analysis]. Canadian Medical Association Journal, 170(12), 1785-1786. doi: 10.1503/cmaj.1031262
Johnston, J. (2004). Outing the conflicted: Et tu, NIH? Science, 303(5664), 1610. [Letter].
Johnston, J. (2004). ES cell research: In the shadow of the ban. Hastings Center Report, 34(2), 48. doi: 10.2307/3527687
Journal - Professional & Other Non-Research Articles
Johnston, J. (2004). The women behind cloning. Washington Post, (March 8). [Commentary].
2003
Journal - Research Article
Johnston, J., & Thomas, M. (2003). Summary: The science of genealogy by genetics. Developing World Bioethics, 3(2), 103-108. doi: 10.1046/j.1471-8731.2003.00064.x
Johnston, J. (2003). Resisting a genetic identity: The black seminoles and genetic tests of ancestry. Journal of Law, Medicine & Ethics, 31, 262-271.
Baylis, F., Beagan, B., Johnston, J., & Ram, N. (2003). Cryopreserved human embryos in Canada and their availability for research. Journal of Obstetrics & Gynaecology Canada, 25(12), 1026-1031. doi: 10.1016/S1701-2163(16)30344-9
Journal - Research Other
Johnston, J. (2003). [Review of the book Human cloning and human dignity]. Quarterly Review of Biology, 78(3), 347. doi: 10.1086/433068
Johnston, J., & Elliott, C. (2003). From the guest editors. Developing World Bioethics, 3(2), iii-iv. doi: 10.1046/j.1471-8731.2003.00063.x
Johnston, J., & Eliot, C. (2003). Chimeras and "human dignity". American Journal of Bioethics, 3(3), 6-8. doi: 10.1162/15265160360706714
Johnston, J. (2003). Case study: The Lemba. Developing World Bioethics, 3(2), 109-111. doi: 10.1046/j.1471-8731.2003.00065.x
Other - Edited Journal
Johnston, J., & Elliott, C. (Eds.). (2003). Developing World Bioethics, 3(2). [Guest Editor].
2002
Journal - Research Article
Johnston, J., & Elliott, C. (2002). Healthy limb amputation: Ethical and legal aspects. Clinical Medicine, 2(5), 431-435. doi: 10.7861/clinmedicine.2-5-431
Johnston, J. (2002). New rules for embryo research: Bill C-56 and the Canadian Institutes of Health Research Stem Cell Research Guidelines. Journal of Obstetrics & Gynaecology Canada, 24(9), 722-726.
Johnston, J. (2002). Mum's the word: Donor anonymity in assisted reproduction. Health Law Review, 11(1), 51-55.
Journal - Research Other
Johnston, J. (2002). Just your roots are showing [In brief]. Hastings Center Report, 32(6), 6. [Commentary].
2001
Journal - Research Article
Johnston, J. (2001). Are sex selective abortions wrong? New Zealand Bioethics Journal, 2, 9-16.